Aicardi syndrome is a rare genetic malformation syndrome characterized by the partial or complete absence of a key structure in the brain called the corpus callosum, the presence of retinal abnormalities, and seizures in the form of infantile spasms.
Unfortunately Isabella is at the severe end of the Aicardi Syndrome spectrum and suffers blindness, no speech ability and poor body control as well as daily seizures.
Absolutely not, despite the above Isabella has brought countless joy to her family and many others and through your support we’ve given Isabella many wonderful experiences.
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All donations are lodged to a special bank account for Isabella and are used for the purchase of specialised equipment and services.
